Just a few weeks ago, my daughter and I had the very unique opportunity to meet another family impacted by the same rare neuromuscular condition that we are. We discovered this family, living just three hours from us, because their daughter had participated in the local Muscular Dystrophy Association Walk and was interviewed by their local news station. As a result, our meeting also received local news coverage, and I wanted to share a link to that video clip with all of you.
Tallahassee woman meets Jacksonville teen battling same rare disorder
~as aired on WCTV in Tallahassee, Florida.
It was strange meeting them because we all were immediately at ease with each other, as if we had known them for years. However, I suppose that is to be expected when you are among the precious few who can relate on such a personal level. Hopefully we will have the chance to get together with them again in the near future.
(Note that the condition referenced is not quite as rare as indicated in the news clip, but still
extremely rare none the less.)