Beyond Wishing for Wellness
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It’s the Little Things

7/23/2017

 
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Gifts sent by two people who never met my daughter but have the same rare condition.
So many people are constantly “busy”. Whether that is with work, kids, chores, school, sports, social events, or all of the above; daily life is full of activity and obligations leaving little time to think about much else. I know because that’s exactly how my life used to be. But what about the people whose lives aren’t like that?

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Medically Uncommon Often Means Disregarded

7/14/2017

 
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In ER, unmonitored and no testing done as a severe neuromuscular attack finally subsides. Photo taken October 13, 2015, age 12.

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